We are pleased to announce Christian's left vocal cord has healed. It closes 100% and opens 90%. The closing was what we are worried about since he aspirated into his lungs. The ENT doctor put in his recommendation to start trial feeding Christian. We will have to await another swallow test which at this point will probably be after his second open heart surgery. I have given him a little bit by bottle, but he is not thrilled since his taste buds are not use to having any taste.
We also had a cath lab to measure pressures of Christian's heart on April 9. He did great considering it was delayed 3 1/2 hours. It was a very long day. They found that his oxygen saturation in his blood is not as high as they would like so the surgery will be earlier than later. They are looking mid May, but we are still awaiting the phone call of an exact date. It is a phone call we are dreading.
We have been through the first, one down two more to go, but no one can prepare you to hand over your child to put his tiny life in the hands of God and the doctors. Sometimes I feel like a helpless mother. Gosh dang it I am suppose to be able to protect my child and I can't; not from this. My heart breaks. I want him to heal completely. I want to be able to give him my heart. I would gladly take his broken one so he would not have to feel an ounce more of pain or suffering. I am just discouraged and devastated. I feel defeated. I am terrified for the worst to happen. This is our reality!
