The Journey of our Superman, Christian Matthew: June 2013

I have been bad about updating. A lot has gone on. While we were still in the hospital my grandma passed. We were released from the hospital May 20, only 11 days after Christian having his surgery. :) I then got a flight home to be at the funeral May 21. It was a whirlwind! Anyway, Christian is doing very well. His incision is healing nicely. They went back in the same incision from his previous surgeries and even the chest tube was inserted in the same scar. The only new scars he has is little ones from his pacing wires ( they put these in all patients that just had major heart surgery as a precautionary measure). He will begin weekly physical and feeding therapy. We were okayed to start feeding him by mouth! :) of course it is going to be a process and we will have to work up to him eating all his food by mouth and not his tube. My goal is to get his g tube out before Christmas. He just continues to amaze us and bless us. He is an amazing little boy and Hunter and I are so blessed to be his parents.