Super Sawyer and his Super Power; Prayer
When Mommy was pregnant with me, She got a call at work. It was the OB office saying they were sending her to a specialist for a diagnostic ultrasound because they thought something was wrong with me. Her and Daddy worried and had no clue what it was, but they soon found out I had a cleft lip. They prepared, got the special bottles, found a surgeon, etc. They prayed for healing still.
When I was born mommy says I was PERFECT! Cleft and all because I was unique and special. Just perfectly fashioned by God himself. The pediatrician was in the delivery room and wasn't comfortable with my ashy grey tone. He said he would stay with me overnight in the nursery and keep a watch on me. Overnight I had trouble keeping my oxygen up and the peditrician heard my heart murmur. I was transferred to Children's in Knoxville for further testing. When mommy amd daddy arrived shortly after, they were taken to a room where the doctors laid on the news. They knew of I had a severe cleft lip and palate.... the doctors told my parents I was deaf, and blind. Still thinking all is well until they then told mommy and daddy about my heart. My heart didn't develop fully leaving me with a working left side, but a right side that was so small it had no function. I only had half a heart. They talked of surgeries, but soon refused to do any because of how fragile I was. They told my mommy and daddy they believed I had Trisomy 13 which they said would give me 3 months to a year. However, without surgery... I would die from heart failure in 3 days. The doctors didn't realize my God was much stronger than their silly statistics.
Mommy and Daddy wouldn't give up on me. They prayed to God and watched as He worked wonders. I had 2 holes in my heart as well. One should have closed itself shortly after birth. It was giving just enough blood to my lungs and once it closed I would decline fast, or so the doctors said. Guess what though, IT STAYED OPEN. The test results were coming in one by one. Not deaf, vision would be limited, but not blind, Negative for T13!!! A few days past with me hanging tight... until I did start to decline, the hole was starting to close. It stayed open just long enough for me to be flown to Vanderbilt.
I had his first heart surgery at 2 weeks old. The following night, my heart stopped beating. Mommy and daddy were in a consult room while they were doing CPR on me for almost 30 minutes. Mommy sent one text message to my grandma. Telling her my heart had stopped to call everyone wake them up and have them pray. Not long after my heart was beating again. I couldn't see my mommy and daddy just yet. I was critical and the CPR had opened my chest wound from surgery so I needed to be closed back up. My parents were sent down the hall to a sleep room. No sooner than they arrived, the phone rang. My heart had stopped again. The team had about called it... then out of no where.... a heart beat. Faint, but steady. God gave mommy and daddy peace and they were able to sleep. The next day I was pretty bruised up from compressions. It took me a while, but slowly I recovered and the tubes and wires were all removed. I was FREE! I was able to go home the day before I was a month old. I was excited to see my home and spend time with my mommy and daddy!
I had my 2nd heart surgery at around 4 months. Followed by a Nissen Fundoplication and Gtube surgery as soon as I recovered 2 weeks later. I had my first lip repair at 1 year with ear tubes also placed, my palate at 16 months, I had my nose and sinus surgery at age 2. My eyes are also underdeveloped; my right eye is completely blind and so small I had a prosthetic eye to fill the empty space so my bone structure will grow normally. My left eye is legally blind and also has a coloboma.
I am proof prayer works!
I have a long road ahead of me still so please follow my story http://www.facebook.com/teamsupersawyer
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