Wednesday, January 30, we had our first follow up cardiologist appointment. Everything looked great, except while we were there Christian had a poop that had blood in it. Dr. Bhat told us if it continued to call 2B (cardiologist floor) and let them know we were headed to the ER. He also sent for us to get blood work at the local hospital, Kent General. Well Thursday he did not have any blood until the evening, 2 bloody stools back to back we decided to call before we drove up and ask what they thought. Of course they told us to come in. We packed our bags bc we didn't know if we would be admitted. The ER doctors did no test and simply told me to watch what I ate and decrease my dairy intake. I was a little bit frustrated. Friday Dr. Bhat's assistant called us and told us the blood Kent had taken cloted and the test were not able to be read. Monday rolled around and I called Dr. Bhat's office to get another referral to go get blood work, the nurse asked if Christian was still having blood in his stool. He was so she wanted to call Dr. Bhat to see if instead of going back to Kent to get the blood work if we should just come up to A. I. Dupont. Well Dr. Bhat decided it would be best to go ack to the ER. 5 Hours later they decided to admit us because they thought Christian had a milk allergy and wanted to monitor him on a new formula. He would no longer be getting breast milk mixed with Similac. Well I was a little frustrated because the cardiologist on call was going to send us home, but the ER doctor swayed him other wise. I understand my son is special and they are more inclined to keep us , but it really was unnecessary. They wanted to watch him on a new formula that is predigested. Here is the kicker, they did not feed him until we got up to 2B. He missed his feeding at 6 and then was an hour late on his continuous feed starting at 9. Not only was this an issue, but they wanted to watch him on the new formula that he would be getting now, the problem was they did not have it and told the cardio floor we did. So the point of us staying was to watch him on this new formula which they did not have, so Christian got a different formula. I was not happy. We then did not get discharged until 2 pm the next day because they had to track down this formula. Oh they also wanted us to stay so that we could se the G.I. doctor which we did not see because they could not get us in. We are home now and everything is going well. No more bloody stools and Christian is happy. We had pictures taken of just him and then Family pictures as well. We can not wait to see them. We also have a video shoot for the hospitals wellness network so that other parents can see what it is like in the CICU. We are very excited to get to share our story.
Christian also had a development assessment and he is doing well. His neck muscles and holding his head up is a little delayed, but that is it. I am so proud of my little nugget. We continue to praise God for the miracle He has blessed us with, because that is what Christian is; SIMPLY A MIRACLE.
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